> For the complete documentation index, see [llms.txt](https://www.prrt2.org/llms.txt). Markdown versions of documentation pages are available by appending `.md` to page URLs; this page is available as [Markdown](https://www.prrt2.org/about-the-foundation/privacy-policy.md).

# Privacy Policy

Privacy Policy for PRRT2 Foundation, Inc. and prrt2.org — how we collect, use, and protect your information.

**Last updated: June 2026**

PRRT2 Foundation, Inc. ("we," "our," or "the Foundation") operates prrt2.org (the "Site"). This Privacy Policy explains what information we collect, how we use it, and your rights regarding that information.

By using this Site, you agree to the collection and use of information in accordance with this policy.

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## Information We Collect

**Information you provide directly:**

* Email address when you subscribe to our newsletter or mailing list
* Name and email when you submit a contact form
* Information you share when participating in community discussions or surveys

**Information collected automatically:**

* Website usage data through analytics tools (pages visited, time on site, browser type, general geographic region)
* Cookies and similar tracking technologies used to improve site functionality

**Information we do NOT collect:**

* We do not collect or store personal health or medical information through this website
* Patient registry participation is managed through CoRDS (Coordination of Rare Diseases at Sanford), a separate organization with its own privacy protections

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## How We Use Your Information

We use the information we collect to:

* Send newsletters and updates about PRRT2 Foundation, including research news, community events, and organizational updates
* Respond to inquiries and contact form submissions
* Improve the website and user experience
* Understand how visitors use the site to better serve the PRRT2 community
* Comply with legal obligations

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## Sharing of Information

PRRT2 Foundation does not sell, rent, or trade your personal information to third parties.

We may share information in the following limited circumstances:

* With service providers who help us operate the website (such as email newsletter platforms or web analytics providers), who are bound by confidentiality obligations
* If required by law, regulation, or legal process
* To protect the rights, safety, or property of PRRT2 Foundation, its users, or the public

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## Cookies and Analytics

This website uses cookies and analytics tools, which may include Google Analytics, to understand how visitors interact with the site. Analytics data is used in aggregate and does not personally identify individual visitors.

You may disable cookies through your browser settings. Note that disabling cookies may affect some functionality of the site.

To opt out of Google Analytics tracking, you may use the Google Analytics Opt-out Browser Add-on available at [tools.google.com/dlpage/gaoptout](https://tools.google.com/dlpage/gaoptout).

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## Email Communications

If you subscribe to our newsletter or mailing list, you may unsubscribe at any time by clicking the unsubscribe link in any email we send, or by contacting us at <contact@prrt2.org>.

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## Children's Privacy

This website is not directed to children under the age of 13. We do not knowingly collect personal information from children under 13. If you believe we may have collected information from a child under 13, please contact us at <contact@prrt2.org>.

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## Data Security

We take reasonable steps to protect the information we collect from unauthorized access, use, or disclosure. However, no internet transmission or electronic storage is completely secure. We cannot guarantee the absolute security of your information.

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## Your Rights

You have the right to:

* Request access to the personal information we hold about you
* Request correction of inaccurate information
* Request deletion of your personal information
* Opt out of email communications at any time

To exercise any of these rights, contact us at <contact@prrt2.org>.

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## Changes to This Policy

We may update this Privacy Policy from time to time. We will notify you of significant changes by posting the new policy on this page with an updated date.

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## Contact Us

**PRRT2 Foundation, Inc.** North Port, Florida 34286 <contact@prrt2.org>

EIN: 42-3128330