> For the complete documentation index, see [llms.txt](https://www.prrt2.org/llms.txt). Markdown versions of documentation pages are available by appending `.md` to page URLs; this page is available as [Markdown](https://www.prrt2.org/about-the-foundation/contact.md).

# Contact

Contact the PRRT2 Foundation, a patient-led advocacy organization for people affected by PRRT2 gene mutations. What we welcome hearing about, and how to reach us.

PRRT2 Foundation is a patient-led advocacy organization dedicated to education, awareness, and community for people affected by PRRT2 gene mutations. Connection with this community is a large part of why we exist.

## Get in touch

* **Email:** <contact@prrt2.org>
* **Facebook:** [PRRT2 Foundation community group](https://facebook.com/groups/prrt2) — often the fastest way to reach the community and get peer support

Prefer to write to us directly? Send a message through our contact form and it goes straight to the Foundation team.

<a href="https://contact.prrt2.org" class="button primary">✉️ Send us a message →</a>

## What we welcome

* **Your story.** If you carry a PRRT2 variant — or suspect you do — your experience helps others who are where you once were. See [Patient Stories](/living-with-prrt2/patient-stories.md).
* **Corrections and feedback.** If something on this site is unclear, outdated, or wrong, please tell us. Accuracy matters to us.
* **Research and media inquiries.** We welcome collaboration with researchers, clinicians, and journalists covering rare neurological conditions.
* **General questions** about navigating the site or finding information.

## Please note

{% hint style="warning" %}
**PRRT2 Foundation does not provide medical advice.** Nothing on this site — including any AI-assisted answers — is a substitute for evaluation and guidance from a qualified clinician. We cannot comment on individual diagnoses, test results, or treatment decisions. Those conversations belong with your own specialist.

If you or someone else is in a medical emergency, contact your local emergency services immediately.
{% endhint %}

Replies may take some time. We appreciate your patience.

***

## About this organization

**PRRT2 Foundation, Inc.** North Port, Florida, USA <contact@prrt2.org>

PRRT2 Foundation, Inc. is a recognized 501(c)(3) tax-exempt public charity. EIN: 42-3128330.

All original content on this site is the intellectual property of PRRT2 Foundation, Inc. © 2026 PRRT2 Foundation, Inc. All rights reserved.

***

* [Links & Support](/resources/links-and-support.md)
* [Frequently Asked Questions](/resources/faq.md)
* [Disclaimers & Legal](/about-the-foundation/disclaimers.md)